Chronic Daily Headache Syndrome...

We recently found out that my sister Amanda has been misdiagnosed the past 2 and a half years. She was told she had Myasthenia Gravis but after seeing an MG specialist she found out that was incorrect. She endured so much because of this misdiagnosis. Her first doctor only had to do one simple test to confirm the MG diagnosis and he did not do it. She found out about this test when she saw the MG specialist. He did this test twice and it was negative. Because of the first doctors lack of knowledge (or whatever)...blah blah blah, Amanda had to have her sternum cracked open, her thymus removed, part of her lung removed, and now has her ribs put together with wire. The surgery which could have killed her was done for no reason at all. She has been on medication for no reason and will need to have her organs checked for signs of damage from this medication. She was also a few months away from getting her court date for disability after 2 and a half years which she will not get now because she was misdiagnosed. My poor sister has been through SO much. Her new neurologist is getting her in with the right doctors for the right tests. All her problems started 2 and a half years ago when she had laser eye surgery. She got a headache that day and has had a headache every single day since then. She is weak, tired, and has problems with extremity pain and it is probably all from chronic headaches we now find out.

Long-duration CDH (Chronic Daily Headache) is a significant public health concern. Approximately 3% to 5% of the population worldwide have daily or near-daily headaches. The disability associated with this disorder is substantial, as patients have a significantly diminished quality of life and mental health, as well as impaired physical, social, and occupational functioning. The article states that the headaches start “out of the blue”; and has occurred daily from onset. The mayo clinic says no one knows what causes them but a couple of possibilities are:

• You develop a heightened response to pain signals (this is seen in Fibromyalgia patients)
  
• The part of your brain that suppresses pain signals isn't working properly (this is seen in auto-immune patients)